National Breast Cancer Audit - Research summaries

The National Breast Cancer Audit is continually performing research into trends in the diagnosis and management of breast cancer in Australia and New Zealand. This research has resulted in a number of publications in internationally recognised journals. Below are summaries of a selection of recent publications generated by the audit team. For further information see our publications page.

Survival information on National Breast Cancer Audit patients

Access to breast care nurses: A National Breast Cancer Audit survey of breast surgeons

How surgical treatment for women with early breast cancer can change with age

Are males with early breast cancer treated differently from females with early breast cancer in Australia and New Zealand?

Trends in surgical treatment of younger patients with breast cancer in Australia and New Zealand

Have clinical guidelines for breast cancer treatment changed practice?

The use of multidisciplinary care teams by breast surgeons in Australia and New Zealand

Management of ductal carcinoma in situ in Australia and New Zealand

 

Survival information on National Breast Cancer Audit patients

The National Breast Cancer Audit (NBCA) of the Royal Australasian College of Surgeons has been collecting information from surgeons on the treatment of their patients who were diagnosed with breast cancer since 1998. This data is used to assess surgeon performance, as well as for research into early breast cancer treatment in Australia and New Zealand.

As the data does not include information on how many patients survive, researchers decided to link the audit database to the central database of deaths at the Australian Institute of Health and Welfare, the National Death Index (NDI). However, the NBCA data only uses the first three letters of the patient's name and the date of birth, to protect privacy. Researchers wanted to make sure that linked NDI data would refer to the same patient and not another person with a similar name.

A pilot study was conducted in South Australia (SA), in which data on a small number of patients recorded in the NBCA and also the SA Cancer Registry were linked to the SA death records. The two linkages gave similar results.

The remaining Australian cases in the NBCA database were then linked with the NDI data, and the results were compared with reported survival rates of patients with breast cancer in New South Wales and the United States of America. The survival rates were similar in all three databases.

This study showed that the data of the NBCA and the NDI can be linked successfully. The NBCA data can now be used to consider how factors like age, screening and differences in treatment affect the survival of Australian breast cancer patients.

Roder, D, Wang, J, Zorbas, H, Kollias, J, & Maddern, G. Survival from breast cancers managed by surgeons participating in the National Breast Cancer Audit of the Royal Australasian College of Surgeons. ANZ Journal of Surgery, 2010 Nov; 80 (11):776-780.

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Access to breast care nurses: A National Breast Cancer Audit survey of breast surgeons

Breast care nurses (BCNs) provide continuity of care for patients being treated for cancer by various professionals, and make sure that patients are well informed about both the disease and their treatment. This level of support can improve the physical and psychological outcomes for early breast cancer patients. The National Breast and Ovarian Cancer Centre recommends that a BCN should be one of the 6 core members of a multi-disciplinary care team. Guidelines recommend that the patient sees the BCN before surgery.

A 2006 survey found that the majority of Australian and New Zealand surgeons involved in the National Breast Cancer Audit have access to a BCN either in or outside their practice, although there were differences in access. Public practices were more likely to have direct access to a BCN than private, while surgeons in rural areas found access difficult overall. Direct access to a BCN was also more frequent in New Zealand than in Australia.

Patient interactions with a BCN were most common directly after diagnosis. In a third of practices surveyed, patients met the BCN a second time (usually after surgery), although no private rural patients had access to a BCN more than once.

This study shows that overall, practices have adequate access to a BCN, however BCN availability needs to improve in private and rural practices. Resources are needed to address this inequality and conduct research into the issues affecting the availability of BCNs in Australia and New Zealand. The McGrath Foundation intends to address the lack of access to BCNs in rural Australia.

Marsh C, Wang J, Kollias J, Boult M, Rice J & Maddern G. Disparities in access to breast care nurses for breast surgeons: a National Breast Cancer Audit survey. Breast, 2010 Apr;19(2):142-6.

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How surgical treatment for women with early breast cancer can change with age

Researchers looked at whether the age of women with early breast cancer affected the surgical treatment they had in Australia and New Zealand between 1999 and 2006. They found that a woman was more likely to have some treatments if she was in a given age group.

How a surgeon takes a sample of breast tissue

To find out if a woman has breast cancer, a surgeon takes a sample of a lump in the breast by either:

  • inserting a fine needle into the breast (the most common treatment)
  • core biopsy - the surgeon inserts a large needle through a cut in the skin (more common in women 50-70 years)
  • open biopsy - the surgeon takes tissue out through a cut in the skin (most common in women under 40 years).

Number of operations

  • Women under 40 years were more likely to have larger, high-grade cancers which had spread to the lymph nodes. One in four patients needed more than one operation.
  • Women over 70 were less likely to need more than one operation.

Breast conserving surgery or mastectomy

  • Among patients with early breast cancer who were likely to have similar health outcomes, given their condition and symptoms, younger women were more likely to have breast conserving surgery. More research is needed to check that these women have adequate surgery and follow up.
  • Women over 70 years with breast cancers that could be treated with breast conserving surgery were more likely to have a mastectomy.

Wang J, Kollias J, Boult M, Babidge W, Zorbas HN, Roder D, Maddern G. Patterns of surgical treatment for women with breast cancer in relation to age. Breast J. 2010 Jan;16(1):60-5.

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Are males with early breast cancer treated differently from females with early breast cancer in Australia and New Zealand?

Breast cancer is much rarer in males than females. Guidelines for treating early breast cancer have focussed on the treatment of female patients. This study found that males with early breast cancer were treated differently from females, despite the lack of male-specific guidelines. A total of 151 cases of male breast cancer diagnosed and treated between 2000 and 2008 were compared with the treatment of female patients whose cancer was detected by their symptoms.

Results of the study showed that males were more likely to have only one tumour. These tumours were more likely to be oestrogen or progesterone receptor-positive and tended to be smaller than tumours in females.

Most males underwent mastectomy (86%), while only 3% of males had breast conserving surgery (compared with around half of female patients). A significant proportion of males did not have surgery (11%), which was twice the proportion of females, although no males in the study had refused surgery.

Males were also less likely to have a sentinel node biopsy than symptomatic female patients, and were less likely to undergo radiotherapy, chemotherapy or hormonal therapy for oestrogen receptor positive tumours. The low level of radiotherapy may be related to the high proportion of male patients who have mastectomy, although males were also less likely to receive chemotherapy than female mastectomy patients.

Wang, J., Kollias, J., Marsh, C. & Maddern, G. Are males with early breast cancer treated differently from females with early breast cancer in Australia and New Zealand? Breast, 2009; 18 378-381.

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Trends in surgical treatment of younger patients with breast cancer in Australia and New Zealand

Researchers looked at trends in the surgical treatment of young women with invasive cancer using information from the National Breast Cancer Audit (NBCA). The rate of breast conserving treatment for women aged 40 years or younger in Australia and New Zealand stayed at around 53% between 1999 and 2006. This suggests that the use of breast conserving treatment in younger patients has stabilised, although more research is needed to check that this is the best level of care for patients.

Patients were less likely to have breast conserving treatment than mastectomy if the cancer was:

  • multifocal (i.e. more than one cancer in the breast)
  • >30 mm in diameter
  • centrally located (i.e. behind the nipple)
  • high grade (i.e. cancer cells were more likely to spread)
  • also present in a lymph node
  • EIC positive (had an extensive intraductal component, that is, an extensive area of ductal carcinoma in situ beyond the invasive cancer).

Studies have shown that the presence of these factors means the cancer is more likely to recur at the site if the tumour is removed through breast conserving surgery. By providing mastectomy in those cases, surgeons contributing to the NBCA are making decisions based on the best available evidence for managing breast cancer in young women.

Wang J, Boult M, Tyson S, Babidge W, Zorbas H, Kollias J, Roder D, Maddern G. Trends in surgical treatment of younger breast cancer patients in Australia and New Zealand. Australian and New Zealand Journal of Surgery. 2008 Aug;78 (8):665-9.

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Have clinical guidelines for breast cancer treatment changed practice?

Clinical guidelines are developed using research data, or evidence, to guide surgeons in the treatment of their patients. In 1995 clinical guidelines were developed on breast cancer treatment, recommending that radiotherapy treatment should follow breast conserving surgery (BCS). The Breast Section of the Royal Australasian College of Surgeons would like at least 85% of these patients to receive radiotherapy.

To see whether the guidelines led to a change in breast cancer treatment practice, researchers looked at data submitted by surgeons to the National Breast Cancer Audit (NBCA). In the decade after the guidelines were introduced, the number of BCS patients who did not receive radiotherapy dropped by half. By 2007 almost 90% of BCS patients received radiotherapy, more than expected by the Breast Section. Patients were less likely to receive radiotherapy after BCS if they were older (30% of patients over 70 years compared with 5-6 % of women under 70 years) or at low risk (with smaller, less aggressive tumours and with no information about the lymph gland status).

In conclusion, most breast surgeons are following the recommendation for radiotherapy following BCS. For some patients with good prognostic factors it may be reasonable to omit radiotherapy. Large data collections like the NBCA can be used to monitor whether clinical guidelines are changing practice.

J Wang, J. Kollias, C. Marsh, J. Chesson, M. Boult, W. Babidge and G. Maddern, Monitoring recommendation uptake in breast cancer treatment practice - experience from NBCA, poster presentation at The National Forum on Safety and Quality in Health Care 29-31 Oct 2008 Adelaide.

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The use of multidisciplinary care teams by breast surgeons in Australia and New Zealand

All patients with early breast cancer should have access to care from a range of disciplines, according to the National Health and Medical Research Council (NHCRM). Multidisciplinary care (MDC) teams should include surgeons, medical oncologists, radiation oncologists, radiologists, pathologists, breast care nurses and general practitioners, as recommended by the National Breast and Ovarian Cancer Centre.

A survey sent to all breast surgeons in Australia and New Zealand revealed that:

  • 85% of surgeons were part of at least one fully established MDC team.
  • The six recommended disciplines were well-represented in most teams, with general practitioners the most poorly represented.
  • Most team meetings occurred after surgery when the pathology results were obtained, to discuss treatment options.
  • Most practices had established a communication framework; however, patients were more likely to be discussed in a multidisciplinary forum in public hospitals than private practice (91% versus 83%), and meetings were more likely to be weekly.
  • MDC teams were less common in rural areas, and weekly meetings occurred rarely.

The results of this unique study indicate that breast surgeons in Australia and New Zealand accept the importance of MDC in the treatment of breast cancer patients. However, to ensure that all patients have access to MDC, policymakers must address the difficulties of rural practices in establishing multidisciplinary forums. Surgeons in private practice also need to be encouraged to conform to the standards reached by public service surgeons in this area.

Marsh CJ, Boult M, Wang JX, Maddern GJ, Roder DM, Kollias J. National Breast Cancer Audit: the use of multidisciplinary care teams by breast surgeons in Australia and New Zealand. Med J Aust. 2008 Apr 7;188(7):385-8.

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Management of ductal carcinoma in situ in Australia and New Zealand

Ductal carcinoma in situ (DCIS) is the presence of abnormal cells in the milk ducts and milk sacs of the breast; these cells are not malignant and do not spread to the rest of the body. Up to 20% of diagnosed breast cancer cases are DCIS. The study looked at whether patients with DCIS in Australia and New Zealand were treated in accordance with the 2003 National Breast Cancer Centre guidelines. The 3629 patients were enrolled in the National Breast Cancer Audit by 274 surgeons between January 1998 and December 2004.

Overall, patients were treated according to the guidelines. However, improvements could be made in the following areas:

  • The use of radiation therapy for large and/or high grade tumours was lower than recommended.
  • 30% of patients had axillary interventions, which are not recommended unless the tumour is invasive.
  • More information is needed on the benefits of tamoxifen for cases of DCIS.

A Cuccins-Hearn, M Boult, W Babidge, H Zorbas, E Villanueva, A Evans, D Oliver, J Kollias, T Reeve, G Maddern, National Breast Cancer Audit: Ductal Carcinoma In situ Management in Australia and New Zealand, ANZ J. Surg. 2007; 77: 64-68.

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